Sophie’s Update – October 2009

We continue to be mesmerized by the changes and growth in Sophie. She is crawling! We were told to delay her walking by her PT so that she would be forced to move through all the developmental stages. We however since changed that protocol and now going to P/U her AFO’s which are leg braces that are molded to her foot and will help her develop proper form when walking. They should in turn help her to walk sooner by months than she would typically have on her own. She is making a bunch of new syllables and has said “Ma” and “Da”.

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Miracles Do Happen

In the beginning my prayers were difficult to formulate because I was always a “let his will be done” type gal as he knows best, right? Difficult because I wanted different results than I was seeing. Then I began to hear more about “praying without ceasing” and praying for your heart’s desire. That made the difference in my requests for my daughter from God. I began to pray and still do for complete healing and her happiness with the knowledge that I will accept his will.

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Update May 27, 2009

We have experienced many positive things since our last entry to Sophie’s story. Sophie has been seizure-free for almost a month now. That is huge for us! We will get a second opinion from another Neurologist that specializes in seizures to fortify ourselves with information. However, due to the control of the spasms, we are noticing vast improvements in her developmentally without the seizures robbing of the ability to develop. We FINALLY, after 3 attempts, (2 ear infections, and 1 hospital stay) had her ears checked by an audiologist and she has perfect structure. One less thing to worry about!! She is a wondrous miracle to us. Pure sweetness and joy oozes from her every pore.

We will be having her 1st birthday this Saturday. We will have all the wonderful people there that have supported us through this tough year. We thank you all for your continued prayers, and support as we have pushed on through all this. When the devil works diligently on you, you know you are in the right hands.

Sophie’s Story

Sophie was born on May 31st 2008. She weighed 8lbs 2ozs and had 9’s for her apgar scores. She was often commented on as being a petite featured, little, doll with pretty eyes. Little did we know her vision would be one of the first signals something was amiss.

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